Patient education: Deep Brain Stimulation surgery

A cross-disciplinary sprint to improve education for movement disorder patients preparing for Deep Brain Stimulation surgery, applying human-centred and service design principles to translate clinical insights into patient-facing solutions. In association with the Dublin Neurological Institute (DNI), the Mater Misericordiae Hospital and NCAD.

Role

Service designer

Industry

Public healthcare

Duration

1 week • 2025

Prototype testing with 3D brain model

Overview

Deep Brain Stimulation surgery (DBS) is a neurostimulation surgery offered to patients with Parkinson’s and other movement disorders. An electrode planted in the brain stimulates three target areas, relieving tremors. This design sprint focused on bridging the gap between complex neurosurgery, clinician consultations and patient understanding of Deep Brain Stimulation surgery through co-design.

Problem

Due to the complex nature of the surgery, service was breaking down at the point of explanation, leaving patients overwhelmed and clinicians struggling to communicate abstract concepts.

Goal

To support clearer conversations, reduce patient anxiety, and improve decision-making by redesigning the education touchpoints around DBS surgery. The focus was on clarity, emotional reassurance, and efficiency across the patient consultation journey.

Constraints

Severe time pressure limited access to stakeholders, pushing prioritisation and a lean design approach.

Research

An ethnographic research approach was taken to understand the consultation space, tools and environment that both clinicians and patients interacted with. By observing and interviewing both clinicians and patients in the consultation space, we grounded the service in real needs rather than assumptions.

  • 3 x stakeholder interviews

  • 2 x patient interviews

  • 2 x observational sessions

  • 4 x contextual interviews

  • Patient and clinician journey map

  • Ecosystems map

  • 3 x stakeholder interviews

  • 2 x patient interviews

  • 2 x observational sessions

Clincians draw on white boards to explain DBS surgery.

Clinicians use their own bodies to demonstrate where electrodes enter the brain.

Information is outdated and complex.

“Some patients really don't want to see detailed imagery of the brain. It scares them.”

“Some patients really don't want to see detailed imagery of the brain. It scares them.”

“Some patients really don't want to see detailed imagery of the brain. It scares them.”

- Clinician

- Clinician

Current state blueprint

Key insights

Connection

Drawing to connect with patients was important to retain.



Confidence

Clinicians lack confidence in their drawing skills.



Clinicians lack confidence in their drawing skills.

Overwhelm

Clinicians reported that patients don't tend to read printed materials due to already overwhelming information.

Service users

People living with Parkinson’s and movement disorders for at least 5 years. Typically, the efficacy of their medications have reduced therefore they are exploring new options to manage the disease. The Dublin Neurological Institute (DNI) processes on average 180 referrals for DBS per year where about 80 patients elect for the surgery.

12,000 to 18,000 people live with Parkinson's disease in Ireland, with prevalence doubling over the last 25 years.

- Parkinson's Ireland

Service user persona

Hypothesis

Clear, well-designed visual aids would reduce patient anxiety, shorten consultations, improve patient confidence in choosing surgery and offer clinicians new ways to translate abstract details of the surgery.

Ideation

I led an ideation session with my team utilising 'how might we questions' to co-create multiple concepts grounded in shared clinician and patient insights.

Image template sketch

Brain model sketch

Pamphlet

Reusable template

Image template

Reusable imagery supporting layered explanations and visual clarity while avoiding intimidating medical imagery.

3D brain model

A tactile 3D brain model humanising the service, helping patients ask better questions, and removing the strain from clinicians using their own bodies.

Pamphlet

We challenged the assumption that take-home materials don't work, exploring personalisation as a way to relieve recall for patients.

Prototyping and testing

We rapidly prototyped and tested low-to-mid fidelity tools with clinicians - a reusable image template and a 3D brain model - integrating clinician feedback to refine solutions that fit naturally into the consultation service without overwhelming patients.

Testing imagery with clinicians

Sample imagery

“It would be great to show the different layers of the brain.”

“It would be great to show the different layers of the brain.”

“It would be great to show the different layers of the brain.”

- Neurologist

- Neurologist

3D brain mould

Testing 3D brain model with clinicians

Service user feedback

Real consultations validated that the tools supported understanding without influencing patient autonomy. Both patients and clinicians responded positively to tools that made the invisible visible and the service more humane.

“I love how tactile the brain model is - patients can hold it and gain a better understanding of where the electrode enters the brain.”

“I love how tactile the brain model is - patients can hold it and gain a better understanding of where the electrode enters the brain.”

“I love how tactile the brain model is - patients can hold it and gain a better understanding of where the electrode enters the brain.”

- Clinician

- Clinician

Final visuals

Reusable image template

3D brain model

Personalised pamphlet

Presentation

I created a presentation framing the project within the wider healthcare ecosystem to show organisational, not just service user-level, value, which was delivered to 200 medical and design professionals at The Mater Misercordiae Hospital.

Outcomes

The project placed third overall out of 25 projects and the DNI is currently seeking funding to further test the 3D brain model with service users and clinicians with the aim of implementing the tool into consultation workflows. If adopted, the tool has the potential to educate 180 movement disorder patients per year on the complexities of Deep Brain Stimulation surgery, while also assisting the clinicians with their ongoing education outreach and training.

Reflection

This project reinforced the power of service design to build trust by designing for clarity, empathy, and real-world constraints.

Next steps

My team are currently collaborating with the Dublin Neurological Institute to raise development funding to further develop and scale the tools through further patient testing.

Other projects

Problem

Due to the complex nature of the surgery, service was breaking down at the point of explanation, leaving patients overwhelmed and clinicians struggling to communicate abstract concepts.

12,000 to 18,000 people live with Parkinson's disease in Ireland, with prevalence doubling over the last 25 years.

- Parkinson's Ireland

Interested in connecting?

Let’s talk projects, collaborations and opportunities to make a difference.

Book a call

Interested in connecting?

Let’s talk projects, collaborations and opportunities to make a difference.

Book a call

Interested in connecting?

Let’s talk projects, collaborations and opportunities to make a difference.

Book a call

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